Julie's Website
New! PT 2011
August 2008 Bethlem Myopathy/Ullrich CMD conference notes
October 2005 Bethlem Myopathy/Ullrich MD conference notes
Update 2006
Update 2005
Update 2004
Julie's Hypotonia Story
The Medical Puzzle
The Muscle Biopsy
The Diagnosis
Physical Therapy--updated in 2008!
Seating at school
Julie's Wheels
The Sleep Studies
Julie's flexible Daddy
Bethlem Myopathy--DNA and Muscles
Julie's Bethlem Myopathy Book

Welcome to Julie's website!  Julie has faced some challenges in her early years, but with time, therapy, and lots of love she is doing quite well at 15 years old.  If you'd like to learn more about Julie's early journey, try the links on the left.

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Julie, age 13, with her new scooter Scarlett!