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August 2008 Bethlem Myopathy/Ullrich CMD conference notes

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August 2008 Bethlem Myopathy/Ullrich CMD conference notes
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Notes and Handouts

This year was the 5th annual Bethlem Myopathy/Ullrich Congenital Muscular Dystrophy family conference at CHOP, put on by Dr. Carsten Bonnemann and his crew.  Click the links below to download my conference notes (such as they are!) as well as .pdf files of the conference handouts that my husband scanned.
 
If you are having trouble accessing these files, email me at meredithcreation@comcast.net and I will be glad to send them to you directly!

Meredith's conference notes

BM/UCMD Conference Handout (pdf)

OT Handout from conference (pdf)

thewholecrew.jpg
The whole motley crew from the BM/UCMD conference!

Julie is in her wheelchair to the left of the lad with red shorts and a hockey stick.  I'm standing behind her in black and white with my arm around Robin in white and green.  Dr. Bonnemann is behind me, picking up a little fellow so he can be in the picture, too!