This year was the 5th annual Bethlem Myopathy/Ullrich Congenital Muscular Dystrophy family conference at CHOP, put on
by Dr. Carsten Bonnemann and his crew. Click the links below to download my conference notes (such as they are!) as
well as .pdf files of the conference handouts that my husband scanned.
Meredith's conference notes
BM/UCMD Conference Handout (pdf)
OT Handout from conference (pdf)
|The whole motley crew from the BM/UCMD conference!
Julie is in her wheelchair to the left of the lad with red shorts and a hockey stick. I'm standing behind her in
black and white with my arm around Robin in white and green. Dr. Bonnemann is behind me, picking up a little fellow
so he can be in the picture, too!