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Julie's Website

Julie's Bethlem Myopathy Book


Home
New! PT 2011
August 2008 Bethlem Myopathy/Ullrich CMD conference notes
October 2005 Bethlem Myopathy/Ullrich MD conference notes
Update 2006
Update 2005
Update 2004
Julie's Hypotonia Story
The Medical Puzzle
The Muscle Biopsy
The Diagnosis
Physical Therapy--updated in 2008!
Stretching
Torticollis
Orthotics
Theratogs
Seating at school
Julie's Wheels
The Sleep Studies
Julie's flexible Daddy
Bethlem Myopathy--DNA and Muscles
Julie's Bethlem Myopathy Book

Click here to read Julie's very own version of the MDA's "Everybody's Different, Nobody's Perfect:"

Julie's Bethlem Myopathy Book