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Julie's Website
Julie's flexible Daddy

New! PT 2011
August 2008 Bethlem Myopathy/Ullrich CMD conference notes
October 2005 Bethlem Myopathy/Ullrich MD conference notes
Update 2006
Update 2005
Update 2004
Julie's Hypotonia Story
The Medical Puzzle
The Muscle Biopsy
The Diagnosis
Physical Therapy--updated in 2008!
Seating at school
Julie's Wheels
The Sleep Studies
Julie's flexible Daddy
Bethlem Myopathy--DNA and Muscles
Julie's Bethlem Myopathy Book


Mark's stretchy skin!


Now, I will grant you that a lot of people can do this one. My mother can, in fact.


But how many people do you know who can do this? Other than my husband and both my daughters, that is!


And who do you know who can do this?

Does Mark have Ehlers Danlos Syndrome? I don't know. He has the hyperflexibility, the stretchy skin and two scars. He does not bruise easily...that's actually me! And the scars that he has are places where skin is stretched tightly over bone and scars are to be expected in those areas in "normal" people. So then it begs the question does Mark have a mild myopathy or is he some kind of carrier? I don't know the answer to that one, either. But he sure is flexible!